Day 10. Chemo

On Wednesday it was the beginning of week number three for my treatment.  To be honest, Chemo days are actually relaxing and I generally feel great on these days.  My body and mind has had time to rest and recover and my spirits are high.  There are a couple of different chemo day units, I was in yellow for my first two treatments but this time I was assigned to Red, it was a little more comfy with some more room and privacy. I’ve had very low magnesium so my days are a little longer to let everything flow through slowly.  Usually the Cisplatin takes 1hr, then the Magnesium top up takes 2hrs and then a 30min-1hr flush. Another amazing part of my chemo’s is that generally you are only allowed one person to sit with you, but Shan comes down and visits and she just happens to be a nurse at Princess Margaret so we get away with breaking the rules. I asked her to sketch in my book and you’ll see below what an amazing picture she did.  I am loving the sketchbook – thank you Laura Wils for such a creative mind and inspiring me to create one during this treatment.  I will do a post soon on all of the sketches so far! Seeing Shannon’s beautiful face almost everyday of my treatment has been extremely comforting and I’m grateful for our friendship for so many reasons.  My dreams have been crazy during this experience… seriously vivid and some very disturbing.  Friday nights and Saturday all day seem to be my worst days for nausea and waves of anxiety… my body seems angry and tired – it’s like nothing I’ve ever experienced before, sometimes my fingers and toes tingle so much I feel like I’m floating.  Last week I dreamt that I was doing the dishes in the kitchen and I fainted and I turned to dust… and then like an amazing magical trick I reappeared again.  However, still feeling weak I fainted one more time and this time I turned to a large pile of sugar.  I’m not sure what it all means but I told Shannon about it… and this is what she wrote back to me. ❤

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The bracelet. Being diagnosed and breaking the news.

Not an easy day when you realize that life is completely out of your control, especially when your one of those people that is organized with your life and likes to ‘get shit done’.  Suddenly your not suppose to make any plans other than to listen to what the doctors say and surrender to letting your body rest and take to treatment.  Things like… Stay close to home.  Get lots of rest.  Don’t make any travel plans. Try your best to relax. Just take it one day at a time. Relax???????!!!  Are they kidding me? Sure… hold on… let me go relax.  I like to pride myself on being a calm and responsible thinker with my thoughts… but it takes some practice.

I focus on my breathe these days. A lot.

I meditate. A lot.

I require complete stillness often.

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I think one of the hardest days yet was the first day I went to Princess Margaret Hospital, I had walked through the hospital many times before from just being in the area because of being at Mt. Sinai for all of my doctors appointments during my pregnancies but I hadn’t put much thought into it really – I was only ‘passing through’.  I didn’t realize how quickly you become a patient when you are diagnosed and one of the first things they do when you arrive for your appointments is give you ‘the bracelet’.  All I could think was… ‘why are they giving me a bracelet, I don’t want one!’  The hospital bracelet really made me upset… I mean when I was 13 and broke my arm and got a bracelet for being in emerg I think I kept it on for weeks because I thought it was so cool!  This time… it def was’t cool.  Not cool at all. I was uncool.  I guess it indicated that I was staying for a longer period of time and I wasn’t sure if I really understood the degree of what I was about to go through.  I’m a patient.  I’m a Cancer patient at Princess Margaret Hospital.  Fuck me.

I actually often hear the words “Why me?” in waiting rooms.  Seriously… I do.  I actually once blurted… “Why not?”  Jesus Nikki… shut your fucking mouth!  The lady actually laughed… “I guess so… ” she replied.  I apologized and then she said… “No, your right… Cancer doesn’t choose the bad people, I guess I just feel like I’m a good person.”  And you know what… it’s true – she is a good person, just like me and plenty of others. It’s not like if you’ve ever done anything bad in your life you get put into the “Cancer Lottery”.

The next hardest thing to do is tell people, ‘break the news’ so to speak.  So hears the thing… I don’t like to be one of those humans that complains about life – I like to think I take a pro-active approach to making change happen so that I live a full life with all the things I want. And what an awkward conversation starter… Hey, How are you?  Good.  You?  Oh… great – I have Cancer!  Umm… awkward!!!  I’ve often described it as inviting people to your early funeral – even if odds are in your favour.  Everyone has their own experiences with Cancer and sometimes they don’t have pretty endings.  I don’t like a complainer and if you know me you know that I feel this way.  I don’t mind listening to a good bitch session as long as at some point we do something about it. Take action.  I’m not angry at Cancer.  I’m angry that my body is angry going through treatment, I’m sad for it. 

I think a lot of people get diagnosed with Cancer and they have this “aha” moment that tells them they aren’t leading the life they are suppose to.  I didn’t. I actually felt relieved.  All I could think was “thank fucking god I live the life that I do… I wouldn’t change a thing.” And that’s the honest to god truth. I still have a shit tonne more on my list to do… everyone knows about the list 🙂  But… I’m constantly working on it and believe I try my best to muscle through life’s obstacles along the way… this just happens to be one of them.  Shitty, but true.  I think the next hardest thing about telling people is that in some way people feel like my problems are worse than yours.  I’m here to assure you that they are not.  You can’t compare apples to oranges.  What I’m going through is difficult but I will get through it with the help of my friends and family and there may be many dark days (cause god knows that the drugs from chemo give me dark, dark thoughts) but we will get through this slice of my life.  What I want everyone to know is that we can’t compare our problems – it’s all relevant.  We can remind ourselves to have compassion for one another and be great friends, great listeners and be proactive about our own lives.  Just don’t waste it, enjoy it.  Don’t run out tomorrow and buy a sports car… but if you’ve always wanted a sports car… well then – work hard and buy it or rent one for the day!  Love deeply and find joy in your days and allow yourself to have some shitty days too, as long as they don’t overshadow the bright ones we are doing ok.  I know a lot of friends and family going through their own troubles and need help just as much as I do, so let’s just stick together.  Always.

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